tag:blogger.com,1999:blog-6927424045052332929.post2173776881527425513..comments2023-07-04T04:16:00.268-07:00Comments on Matir Asurim: What is disability?DandGhttp://www.blogger.com/profile/13078892548041115257noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6927424045052332929.post-61772055271449427562013-10-11T12:24:11.211-07:002013-10-11T12:24:11.211-07:00Thank you! I think much of the resistance to "...Thank you! I think much of the resistance to "cures" in the disability community is due to the external perspective which is informing the research. As people with disabilities become more accepted and included, their perspective increasingly informs the research instead. Hence, an "external" perspective on T21 produces earlier and more accurate prenatal testing, while an "internal" perspective focuses on improving quality of life. As individuals make their choices, we will see which of the new treatments win out. As you say, "having the individuals control their own life, not having someone control it for them" -- if PWD lost their autonomy and had treatments imposed on them, that would certainly be a big step backwards!!!! Of course, when talking about infants, the parents are the ones who make the choices, but that is true in any case.<br />DandGhttps://www.blogger.com/profile/13078892548041115257noreply@blogger.comtag:blogger.com,1999:blog-6927424045052332929.post-84288419023263213702013-10-11T12:03:33.876-07:002013-10-11T12:03:33.876-07:00I love this line "Research into treatment is ...I love this line "Research into treatment is all about giving people with disabilities the choices to control their own destiny."<br /><br />This is fantastic, because the key is that individuals can control their own life, and not have someone control it for them.Anonymousnoreply@blogger.com