Special needs adoption from a Jewish perspective.

Special needs adoption from a Jewish perspective.
Showing posts with label Wyatt. Show all posts
Showing posts with label Wyatt. Show all posts

Saturday, December 29, 2012

Torah Connection - Va-yechi

By a confluence of the common calendar and the Jewish calendar, the final chapter we read in 2012 is also the final chapter of the book of Genesis.  This is the transition from Israel the large family/clan to Israel the People.  The story is told, however, through two deaths: the death of Jacob, and the death of Joseph.

Jacob does not seem to have changed much since his youth.  He still plays favorites with his sons and grandsons, although he does seem to discriminate between them based on character traits rather than subjective affinity.  With respect to his grandsons Ephraim and Menashe, he continues the tradition of favoring the younger over the elder: Kane vs. Abel, Ishmael vs. Isaac, Esau vs. Jacob, Rachel vs. Leah, Joseph vs. his brothers.  He also repeats this in the blessings to his own children: Judah is favored over Leah's other sons, and Zebulun is favored over Issachar.  This is a theme that has dominated Jacob's entire life, and it persists right to the end.

Joseph, on the other hand, has learned true humility and generosity.  After the death of their father, the other brothers fear that Joseph may take vengeance upon them. Instead, he responds,



'Don't be afraid,' said Joseph to them. 'Shall I then take God's place?
Vayomer alehem Yosef al-tira'u ki hatachat Elohim ani.


You might have meant to do me harm [but] God made it come out good. [He made] it come out as it actually did, where the life of a great nation has been preserved.
Ve'atem chashavtem alay ra'ah Elohim chashavah letovah lema'an asoh kayom hazeh lehachayot am-rav.


Now don't worry. I will fully provide for you and your children.' He thus comforted them and tried to make up.
Ve'atah al-tira'u anochi achalkel etchem ve'et-tapchem vayenachem otam vayedaber al-libam.


Jacob and Joseph both express their dying wish to be buried in the land of their forefathers.  Joseph fulfills his father's wish promptly, mourning him with "a very great and solemn lamentation".  Jacob is embalmed and mourned in Egypt for 70 days before being taken with great ceremony to the Cave of the Patriarchs in Hebron.

Joseph, on the other hand, receives no such treatment.  Instead, "...and he was embalmed and placed in a coffin in Egypt." Thus he was left until his descendants carry his remains back to Israel during the Exodus.

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I am thinking of Joseph's words with respect to the recent Russian ban on American adoptions. It seems like a bad thing, but it can also be seen in the context of Russian reforms of its own child welfare system.   At the same time, a proposed amendment to the ban may allow an exception for children with special needs, so that these may get more attention from potential adopters.   Finally, this may create the pressure on adoption agencies and facilitators to address corruption and poor oversight, so that future adoptions are less likely to disrupt or result in child abuse/neglect (as can happen when parents are poorly prepared).

Praying for Ivan and Celine.

Praying for Wyatt.

Praying for Nathan.

And all the ones we know about and don't know about, who wait to be "fully provided for".

 

Tuesday, June 5, 2012

Ethics of the Fathers Day 8

One of my favorites, from Chapter 2:

In a place where there are no men, strive to be a man.

Yesterday's verse instructed us on seeking the best possible examples to follow.  However, even if there are no examples, we should strive for the highest ideal even if we are the only ones.

No one has inquired about Nicky Z in all of his three and a half years.  Who will "be a man"?



And here is Wyatt.  With one of those really scary diagnoses.  Hydrocephalus.  Possible Cystic Fibrosis.  Tube fed, recumbent, barely moves his hands.




 He does not look hydrocephalic.  Does he have a shunt in place?  If he has CF, then he has already beaten the odds for survival without treatment.  According to Wikipedia,

"While there are no cures for cystic fibrosis there are several treatment methods. The management of cystic fibrosis has improved significantly over the past 70 years. While infants born with cystic fibrosis 70 years ago would have been unlikely to live beyond their first year, infants today are likely to live well into adulthood. Recent advances in the treatment of cystic fibrosis have meant that an individual with cystic fibrosis can live a fuller life less encumbered by their condition. The cornerstones of management are proactive treatment of airway infection, and encouragement of good nutrition and an active lifestyle."

The medical care for CF in the orphanage is probably on par with that of 70 years ago:  negligible.  Note that the management requires prophylactic antibiotics, good nutrition, and an active lifestyle, none of which are available to Wyatt where he is.  If in fact he has CF, he needs out FAST!   More likely, he is just showing the product of extreme neglect and malnutrition of the institutionalized setting, where his Down syndrome is tantamount to a life sentence.

Who will "be a man" and rescue these boys from the "place where there are no men"?


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